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The Akari Foundation

Conexión en Español Para

Las Enfermedades Raras

Nuestra Misión

Educar y empoderar a la comunidad hispana sobre enfermedades raras, ayudar con recursos, concientización, defensa y educación, completamente en español, especializándose en distrofia muscular de Duchenne.

Nuestra Visión

Nuestro objetivo es crear un mundo donde la comunidad hispana afectada por la distrofia muscular de Duchenne y otras enfermedades raras esten unidas, educadas, empoderadas y equipadas con los recursos y el apoyo necesarios para prosperar y superar los desafíos, todo realizado exclusivamente en español. Visualizamos un futuro en el que todos, independientemente de su origen, tengan acceso a información integral, atención compasiva y una red sólida que fomente la conciencia, la defensa y la educación en nuestro idioma principal.

Our Mission

Educate and empower the Hispanic community about rare diseases, help with resources, awareness, advocacy, and education, entirely in Spanish, specializing in Duchenne muscular dystrophy.

Our Vision

We aim to create a world where the Hispanic community affected by Duchenne muscular dystrophy and other rare diseases is united, educated, empowered, and equipped with the necessary resources and support to thrive and overcome challenges, all done exclusively in Spanish. We envision a future where everyone, regardless of background, has access to comprehensive information, compassionate care, and a strong network that fosters awareness, advocacy, and education in our primary language.

Sucursales / Branches

DMD

DMB

SMA o AME

LGMD

Patrocinadores / Sponsors

Miembros de / Members of:

Asociaciones / Partnerships

Contáctenos

Siguenos en nuestras redes

Horario

We are proud to earn the Platinum Seal for sharing our full story. To achieve the highest level of transparency, we add extensive information to our nonprofit profile: information about our missions, programs, leadership, etc.; detailed financial information; qualitative information on objectives, strategies and vision; and our progress toward our mission. Your physical, mental, spiritual and social needs.

Donor Confidence The Akari Foundation is an IRS accredited 501(c)(3) non-profit charitable organization. All donations are tax-deductible. EIN 82-2557369 The Akari Foundation maintains minimum operating expenses. The Board of Directors is a group of committed volunteers. No board member receives compensation. Your generous donation helps us with our Mission to Educate and empower the Hispanic community on rare diseases and help with resources, awareness, advocacy, and education, specializing in Duchenne muscular dystrophy. The goal of the Board of Directors of The Akari Foundation is that donors have the highest level of confidence when making contributions to the Foundation. We intend to provide you with that confidence by sharing the following information. If you have any questions or concerns, please don’t hesitate to email Giving@theakarifoundation.org

IRS determination letter

2022 IRS Form 990 | 2021 IRS Form 990 | 2020 IRS Form 990 | 2019 IRS Form 990