The Akari Foundation Conexión en Español Para Las Enfermedades Raras

Nuestra Misión

Educar y empoderar a la comunidad hispana sobre enfermedades raras, ayudar con recursos, concientización, defensa y educación, completamente en español, especializándose en distrofia muscular de Duchenne.

Nuestra Visión

Nuestro objetivo es crear un mundo donde la comunidad hispana afectada por la distrofia muscular de Duchenne y otras enfermedades raras esten unidas, educadas, empoderadas y equipadas con los recursos y el apoyo necesarios para prosperar y superar los desafíos, todo realizado exclusivamente en español. Visualizamos un futuro en el que todos, independientemente de su origen, tengan acceso a información integral, atención compasiva y una red sólida que fomente la conciencia, la defensa y la educación en nuestro idioma principal.

Our Mission

Educate and empower the Hispanic community about rare diseases, help with resources, awareness, advocacy, and education, entirely in Spanish, specializing in Duchenne muscular dystrophy.

Our Vision

We aim to create a world where the Hispanic community affected by Duchenne muscular dystrophy and other rare diseases is united, educated, empowered, and equipped with the necessary resources and support to thrive and overcome challenges, all done exclusively in Spanish. We envision a future where everyone, regardless of background, has access to comprehensive information, compassionate care, and a strong network that fosters awareness, advocacy, and education in our primary language.

Acerca de "The Akari Foundation" / About "The Akari Foundation"

Patrocinadores / Sponsors

Miembros de / Members of:

Asociaciones / Partnerships

Sucursales / Branches

Contáctenos /
Contact us

¿Necesitas orientación o ayuda? Envía un WhatsApp a:
Do you need guidance or help? Send a message via WhatsApp to:
para recibir la forma de contacto.
to receive the contact form.
¿Eres una organización y quieres contactarnos? Envía un correo a:
Are you an organization and want to contact us? Send an email to:

Horario / Schedule

Para consultas de medios o entrevistas, envíenos un correo electrónico a:
For media consultations or interviews, send us an email to:

The information on the Akari Foundation's website is for educational purposes only and is not intended to replace the advice of a physician or other qualified medical professional.
La información en el sitio web de la Fundación Akari es solo para fines educativos y no pretende reemplazar el consejo de un médico u otro profesional médico calificado.
Donor Confidence The Akari Foundation is an IRS accredited 501(c)(3) non-profit charitable organization. All donations are tax-deductible. EIN 82-2557369 The Akari Foundation maintains minimum operating expenses. The Board of Directors is a group of committed volunteers. No board member receives compensation. Your generous donation helps us with our Mission to Educate and empower the Hispanic community on rare diseases and help with resources, awareness, advocacy, and education, specializing in Duchenne muscular dystrophy. The goal of the Board of Directors of The Akari Foundation is that donors have the highest level of confidence when making contributions to the Foundation. We intend to provide you with that confidence by sharing the following information. If you have any questions or concerns, please don’t hesitate to email Giving@theakarifoundation.org
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