About Us

Ariel and Enrique Nájera the reason for this organization

Luisa leal Our founder is a single immigrant mother who came to this country at the age of 19 when she was pregnant with her eldest daughter, now 27 years old, who was born with a congenital anomaly in her right hand, and her youngest daughter, 13 years old, who had a disease in her right eye where she was close to losing her eyesight several times.

She spent years in hospitals and clinics taking her daughters to therapy and medical checkups. As an undocumented immigrant, she saw how difficult it was to care for someone with different needs.

After meeting the children of her ex-partner, learning about their disease, and seeing how difficult it was to find information in Spanish and support for immigrants with this disease, she set out to find a way to support Hispanic families who are going through this illness. She devoted herself to seeking the best possibilities for children and families in their language; thus, The Akari Foundation was born.

The Akari Foundation is not just about translations; it is about culture, equality, diversity, equity, advocacy, acceptance & belonging.

Our Mission

Educate and empower the Hispanic community about rare diseases, help with resources, awareness, advocacy, and education, entirely in Spanish, specializing in Duchenne muscular dystrophy.

Our Vision

We aim to create a world where the Hispanic community affected by Duchenne muscular dystrophy and other rare diseases is united, educated, empowered, and equipped with the necessary resources and support to thrive and overcome challenges, all done exclusively in Spanish. We envision a future where everyone, regardless of background, has access to comprehensive information, compassionate care, and a strong network that fosters awareness, advocacy, and education in our primary language.

Our Team

Luisa leal


Susanna Hunanyan

Medical liaison executive and community defense

Carolina Delgado

Office Manager

Alexis Lugo

Patient Advocacy Executive

Monserrath Flores


Fabiola Losoyo

Thanatology psychotherapist

Saúl Leal

Outreach Coordinator

Ruben Cantu

Development Program Manager

Claudia Espinal

Community Engagement coordinator and fundraising

Celeste Marchán

Content Manager

Katia Zuñiga

Social Media & Web Manager

Team in Puerto Rico

Carmiña De León

Volunteer Coordinator and Fundraising events

María Colón

Nurse Supervisor & Family Care



Copyright © 2023  The Akari Foundation. All Rights Reserved | Privacy Policy | 990-N