About Us

Ariel and Enrique Nájera the reason for this organization

Immigrant mother of two daughters 1 with a disease in her right eye and the other one born with a congenital anomaly, she saw how difficult it was to navigate through the medical system due to the language barrier and the legal documentation. She met a family with Twin boys diagnosed with Duchenne Muscular Dystrophy and noticed the lack of information in Spanish about rare diseases and the lack of support for immigrant hispanic families in the United States, she set out to find better possibilities for the children.

Our goal is to create communication links with other families and bring information about available resources,advocacy and education. To that end we have created a website 100% in Spanish specialized in Duchenne Muscular Dystrophy

Our Vision

To have a world where everyone has the same access to opportunities, quality of life, and the development of their full potential.  Create a holistic health center to serve the person as a whole, attending to their physical, mental, spiritual, and social needs.

Our Mission

To Educate and empower the Hispanic community on rare diseases, help with resources, awareness, advocacy, and education, specializing in Duchenne muscular dystrophy.

Our Team

Luisa leal


Maria Decavi

Director of family support and social services

Susanna Hunanyan

Medical liaison executive and community defense

Carolina Delgado

Office Manager

Alexis Lugo

Patient Advocacy Executive

Paola Tovar

Executive assistant

Monserrath Flores


Fabiola Losoyo

Thanatology psychotherapist

Saúl Leal

Outreach Coordinator

Elizabeth Pérez

Social Media Manager

Alex Lagunas


Katia Zuñiga


Celeste Marchán




Copyright © 2023  The Akari Foundation. All Rights Reserved | Privacy Policy | 990-N