About Us

Ariel and Enrique Nájera the reason for this organization
Immigrant mother of two daughters 1 with a disease in her right eye and the other one born with a congenital anomaly, she saw how difficult it was to navigate through the medical system due to the language barrier and the legal documentation. She met a family with Twin boys diagnosed with Duchenne Muscular Dystrophy and noticed the lack of information in Spanish about rare diseases and the lack of support for immigrant hispanic families in the United States, she set out to find better possibilities for the children.
Our goal is to create communication links with other families and bring information about available resources,advocacy and education. To that end we have created a website 100% in Spanish specialized in Duchenne Muscular Dystrophy
Our Vision
To have a world where everyone has the same access to opportunities, quality of life, and the development of their full potential. Create a holistic health center to serve the person as a whole, attending to their physical, mental, spiritual, and social needs.
Our Mission
To Educate and empower the Hispanic community on rare diseases, help with resources, awareness, advocacy, and education, specializing in Duchenne muscular dystrophy.
Our Team

Luisa leal
FOUNDER /CEO

Luisa leal
FOUNDER /CEO

Maria Decavi
Director of family support and social services

Maria Decavi
Director of family support and social services
Her primary role as Director of Family Support and Social Services is to maintain direct contact with families in need. She works closely with a team of parents and professionals to provide help and support to other families with any questions or concerns about navigating this illness.
With vast experience within the Duchenne community, Maria is committed to working closely with each family and addressing their needs.

Susanna Hunanyan
Medical liaison executive and community defense

Susanna Hunanyan
Medical liaison executive and community defense

Carolina Delgado
Office Manager

Carolina Delgado
Office Manager
In the time that she has been within the organization, she has quickly learned its operation and its vision, this has led her to feel more identified with the cause.
Her personal vision is to be able to be 100% involved in the foundation under the guidance of Luisa Leal and she hopes at some point in her life to travel to the United States and be present in all the foundation's projects.

Alexis Lugo
Patient Advocacy Executive

Alexis Lugo
Patient Advocacy Executive

Paola Tovar
Executive assistant

Paola Tovar
Executive assistant
Born in Mexico City and raised in Texas, she has been exposed to both cultures and hopes to be able to help the Hispanic community with in the US and other countries, as much as she can, and looks forward to learning and growing with The Akari Foundation with the purpose to continue serving more children with special needs and their families.

Monserrath Flores
MEDIA PRODUCER

Monserrath Flores
MEDIA PRODUCER

Fabiola Losoyo
Thanatology psychotherapist

Fabiola Losoyo
Thanatology psychotherapist
He is currently at The Akari Foundation as part of the team where he can apply his personal and professional experience always thinking about the well-being of patients and their families, with great willingness, empathy and respect.

José Ramírez
Translator

José Ramírez
Translator

Saúl Leal
Outreach Coordinator

Saúl Leal
Outreach Coordinator

Elizabeth Pérez
Social Media Manager

Elizabeth Pérez
Social Media Manager

Alex Lagunas
WEB DESIGNER

Alex Lagunas
WEB DESIGNER

Katia Zuñiga
GRAPHIC DESIGNer

Katia Zuñiga
GRAPHIC DESIGNer

Celeste Marchán
CONTENT WRITER

Celeste Marchán
CONTENT WRITER
Contact
- San Antonio, Texas, USA
- Info@TheAkarifoundation.org
- (+1) 210-630-5451
Schedule
- Monday - Friday
- 09:00am a 5:00pm
- Holidays: Closed