Ariel and Enrique Nájera the reason for this organization
Immigrant mother of two daughters 1 with a disease in her right eye and the other one born with a congenital anomaly, she saw how difficult it was to navigate through the medical system due to the language barrier and the legal documentation. She met a family with Twin boys diagnosed with Duchenne Muscular Dystrophy and noticed the lack of information in Spanish about rare diseases and the lack of support for immigrant hispanic families in the United States, she set out to find better possibilities for the children.
Our goal is to create communication links with other families and bring information about available resources,advocacy and education. To that end we have created a website 100% in Spanish specialized in Duchenne Muscular Dystrophy