Luisa Leal, founder of The Akari Foundation, was on the BloodStream Media podcast, in a new episode called “From Mexico to Texas: Talking about the Akari Foundation.”

In this episode, Luisa shares her start in the world of rare diseases and all the initiatives that are being carried out at the foundation.
“We need to work together to promote equitable access to gene therapies. Access to these life-altering therapies should not depend on your level of income and should certainly not depend on your race.”.

An Interview With Luisa Leal, Founder and CEO of The Akari Foundation

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Luisa Leal, founder and CEO of The Akari Foundation, a Texas-based nonprofit that advocates on behalf of Spanish-speaking families affected by Duchenne muscular dystrophy (DMD).

The Future of Medicine

Legislative Briefing and Reception

Entrevista en True Reason Ministries

Patient Advocates Seek to Raise Awareness of DMD Among Spanish Speakers

Moving the Needle: Rare Disease Clinical Trials Ecosystem for Patients of Color

Using Culturally Appropriate Resources to Influence Health Equity and Access

Global genes

RARE on the Road 2021

World Duchenne Organization

Aguas con la discapacidad Aguascalientes

A rare reality podcast Jordan's Guardian Angels

Horizon Panel Representation Global Webcast

Rare Revolution magazine

Rare is community by Horizon

Global genes rare on the road

Mentions The akari foundation

Interview with Patti Limon



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