Media
For media consultations or interviews, send us an email to: akarimedia@theakarifoundation.org
Hear from Luisa Leal, Founder & CEO of The Akari Foundation, who shared this quote about being named one of the 2023 recipients:
Luisa Leal, founder of The Akari Foundation, was on the BloodStream Media podcast, in a new episode called “From Mexico to Texas: Talking about the Akari Foundation.”
In this episode, Luisa shares her start in the world of rare diseases and all the initiatives that are being carried out at the foundation.
“We need to work together to promote equitable access to gene therapies. Access to these life-altering therapies should not depend on your level of income and should certainly not depend on your race.”.
“We need to work together to promote equitable access to gene therapies. Access to these life-altering therapies should not depend on your level of income and should certainly not depend on your race.” Thanks @TheAkarifoundat! #genetherapy #celltherapy pic.twitter.com/5kakFVkDV3
— Rare & Ready: A Genetic Condition Coalition (@rare_ready) June 7, 2023
An Interview With Luisa Leal, Founder and CEO of The Akari Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Luisa Leal, founder and CEO of The Akari Foundation, a Texas-based nonprofit that advocates on behalf of Spanish-speaking families affected by Duchenne muscular dystrophy (DMD).
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The information on the Akari Foundation's website is for educational purposes only and is not intended to replace the advice of a physician or other qualified medical professional.
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The Akari Foundation is an IRS accredited 501(c)(3) non-profit charitable organization. All donations are tax-deductible. EIN 82-2557369
The Akari Foundation maintains minimum operating expenses. The Board of Directors is a group of committed volunteers. No board member receives compensation. Your generous donation helps us with our Mission to Educate and empower the Hispanic community on rare diseases and help with resources, awareness, advocacy, and education, specializing in Duchenne muscular dystrophy.
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