Media

An Interview With Luisa Leal, Founder and CEO of The Akari Foundation

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Luisa Leal, founder and CEO of The Akari Foundation, a Texas-based nonprofit that advocates on behalf of Spanish-speaking families affected by Duchenne muscular dystrophy (DMD).

TheFutureofMedicine

The Future of Medicine

Legislative Briefing and Reception

Entrevista en True Reason Ministries

Patient Advocates Seek to Raise Awareness of DMD Among Spanish Speakers

Moving the Needle: Rare Disease Clinical Trials Ecosystem for Patients of Color

Using Culturally Appropriate Resources to Influence Health Equity and Access

Global genes

Sarepta

RARE on the Road 2021

World Duchenne Organization

Aguas con la discapacidad Aguascalientes

A rare reality podcast Jordan's Guardian Angels

Horizon Panel Representation Global Webcast

Rare Revolution magazine

Rare is community by Horizon

Global genes rare on the road

Mentions The akari foundation

Interview with Patti Limon

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