At the Akari Foundation we offer a wide variety of programs to help, educate, and empower the Hispanic people and families with Duchenne.
Together, we make a difference
In this section we bring you the most up-to-date information on all our activities, as well as news of interest to the community.
Nos complace presentarnos ante la comunidad hispana y compartir una actualización importante sobre nuestro trabajo en distrofia muscular de Duchenne (DMD). Avidity Biosciences es una empresa
18 de febrero del 2025 / Ensayos Clínicos, Investigación Por: Parent Project Muscular Dystrophy Solid Biosciences Inc. ha anunciado los datos iniciales positivos de su
Por: Özge Özkaya, MSc, PhD | 24 de enero del 2025 El tratamiento con risdiplam durante 30 meses produjo una mejora general clínicamente significativa en
In every episode, we get into deep, inspirational and revealing conversations, while we learn to navigate in the world of rare diseases.
Discover the stories behind those who work tirelessly to make a difference, the challenges they face and the innovative solutions that push us to our purpose.
